I started a post on the way to Dallas this morning but Madie decided that she thought that wasn’t a very good idea and demanded my attention. So I will start over…
We headed to Dallas this morning because Madie had a follow up with her GI doctor. Her vomiting has really improved so Dr. Semrin decided to try her on a new formula. So we are back to a “normal” formula. Not even one that is concentrated. Hopefully we will have a smooth transition and won’t have to take any steps back in her feeding schedule. Please pray that we don’t see an increase in her vomiting! She is doing REALLY well with her “eating”. She is becoming much more accepting of different textures. We have been giving her Mum Mums. If you aren’t familiar with the Mum Mum, it is a flavored rice biscuit that kind melts in your mouth. She prefers the strawberry ones and I must admit I tried one and they aren’t too shabby. I’ve had a few myself. She is opening her mouth for and taking bites from a spoon as well. We are still working on drinking from a cup but she still hasn’t quite figured out how to suck just yet, but she is getting close! We see small advancements in Madie almost daily. Her coordination is getting better and she reaches, grabs for and picks up everything. She laughs more and recognizes familiar friends and family immediately. She will even let other people hold her…if she knows you really well. We are patiently, but anxiously, awaiting all of the necessary approvals for Madie’s new equipment that will really help her learn a few new tricks.
We have been taking Madie to Kindermusik and she LOVES IT! I honestly feel like it is just as important as her PT, OT and ST. She smiles in amazement for 45 minutes every Wednesday morning. She laughs and gets so excited when everyone sings. At one point last week while the entire class was singing shoo-fly , she got so excited that I seriously thought she might bounce right of my arms. I really need to get her on video so you can see what I mean. If you have small children, you should REALLY consider signing up for Kindermusik, you can thank me later.
Now a funny story about Molly Michael. She is in her second year of dance and God Bless, Kristi, her dance teacher. Molly Michael is FULL of energy as are the other little girls in her class. Their recital is in April and they have been practicing their little part in the finale. Molly Michael is showing me her moves and tells me that they will be dancing to “We are family, Hang up on the ceiling Sheree”. I crack up every time I think of her singing it. She is such a funny, smart, spunky little girl and we are so lucky to have her.
Finally, we made a little detour on the way to Plano today. We stopped in Dallas at the Ronald McDonald House to see Charley Rae. She looked great! Charley was just discharged from Children’s yesterday but she will have to stay in Dallas because she needs dialysis 4 times a week. It brought me such joy to see two wonderful examples of God’s work and the power of prayer sitting side by side. Please pray for this family and follow their story on her caring bridge page. Here is a picture of Marshall's Miracles. Madie was very excited to see Charley and kept trying to grab her face. This is the only picture Matt got where they were both looking and Madie wasn't trying to caress her cheek.
Please pray for Madie’s continued healing. I am still amazed at the number of people who ask how Madie is doing and let us know that they are still praying for us. We are so grateful for each and every one of you. God lets us know every day that he is still listening!
With greatest gratitude,
Kristin, Matt, Molly Michael and Miracle Madie
No comments:
Post a Comment